Participants complete a battery of questionnaires drawn from validated scales or indices that provide patient-reported outcomes of: (1) health history and status; (2) social and demographic factors; (3) health behaviors; (4) psychosocial functioning; and (5) psychosexual health.

Health outcomes and status include medical service utilization, medication use, current and past health problems, reproductive status, and pregnancies, as well as evaluation of attention deficit, pain, and quality of life.

Social and demographic factors include marital status, living arrangements, academic achievement, employment status, insurance access, income, and financial hardship.

Health behaviors include tobacco use, alcohol intake, illicit substance use, physical activity, sedentary behavior, sun exposure behaviors, participation in health screening, use of complementary and alternative medicine and dieting behavior.

Dietary intake is assessed using a food frequency methodology.

Psychosocial constructs include health perceptions, motivation for behavior change, body image/weight concerns, perceived stress, cancer impact, post-traumatic stress, depression, anxiety, and somatization.

Psychosexual outcomes include fertility, onset of puberty, sexual development, relationship/marital satisfaction, and sexual health/functioning. Male participants are also asked about history of testosterone therapy, sperm banking, and erectile dysfunction.

In addition, a measure of social desirability is administered to assess potential response bias.

Explore More Study Data

  • Core Battery Assessment

    View the assessments given during on campus visits for St. Jude LIFE and After Completion of Therapy participants.

  • Biological Sample Collection

    View the type and volume of specific blood and urine specimens collected from St. Jude LIFE study participants.

  • Whole Genome Sequencing

    Learn about germline genetics for the St. Jude LIFE cohort, including SNP genotyping, whole genome sequencing, whole exome sequencing, and primary data analysis.